Kaye and her son Lazarus Banez are seen in an undated family handout photo. The mother, in Richmond, B.C., said school staff told her earlier that Lazarus would need to return to his Grade 6 classes in person by mid-November or face removal from the independent school. THE CANADIAN PRESS/HO-*MANDATORY CREDIT*

Kaye and her son Lazarus Banez are seen in an undated family handout photo. The mother, in Richmond, B.C., said school staff told her earlier that Lazarus would need to return to his Grade 6 classes in person by mid-November or face removal from the independent school. THE CANADIAN PRESS/HO-*MANDATORY CREDIT*

B.C. families of neurodiverse kids left scrambling before school starts: advocates

Advocates say they’d like to see school districts reaching out to families directly to build educational plans

Kaye Banez cried with relief after learning that her eight-year-old son Lazarus, who is on the autism spectrum, can enrol at his school remotely this fall.

The mother in Richmond, B.C., said school staff told her earlier that Lazarus would need to return to his Grade 3 classes in person by mid-November or face removal from the independent school.

The risk is too high for Lazarus to go back at this point in the COVID-19 pandemic, said Banez, since he relies on touch to sense the world around him and struggles with physical distancing.

“We’re also trying to keep everybody around him safe,” added Banez, noting she has diabetes and her kids’ grandparents on both sides of the family have compromised immune systems.

Banez said it was agonizing as her family worried they would be forced to register Lazarus and his six-year-old sister for home schooling. That would mean Lazarus would lose access to supports, such as speech and occupational therapies, that are paid for through funding that depends on enrolment in school or a distributed learning program — many of which are at capacity, she said.

After meeting with staff from her kids’ school and the Ministry of Education’s inclusive education division on Friday, Banez learned about provincial guidelines that stipulate school districts are required to make so-called “homebound” educational services available to students absent from the classroom because of medical and psychiatric reasons.

The expectation that schools work with families who need access to the homebound program is included in the province’s document guiding the response to the pandemic for students in kindergarten to Grade 12.

However, Banez said she is in touch with another mother on Vancouver Island whose child is on the autism spectrum and who hasn’t yet secured a remote learning option through their school.

“She’s done everything that I’ve done and the answer is still no. So, she’s doing now another step of saying she’s aware of this operational guideline,” said Banez, who serves as the vice president of the board of directors for AutismBC.

“It’s still very inconsistent. Even though the process that parents take to advocate for these accommodations is the same, there’s still children being left behind.”

READ MORE: B.C. school staff, older students required to wear masks in ‘high traffic areas’

It shouldn’t be up to parents to explicitly invoke their rights in order to ensure their kids can access the educational instruction and other supports they need, said Banez.

That’s especially true for parents who are newcomers to Canada and may struggle navigating back-to-school resources that are available primarily in English, she added.

“How could they possibly be calling government officials, school boards, principals, media, writing letters, reading operational guidelines (and) documents pages and pages long?” she asked.

The founder and chair of BCEdAccess, a volunteer-run organization that advocates for equitable access to education for complex learners and kids with diverse abilities, echoed Banez.

Tracy Humphreys said she’d like to see schools and districts reaching out to families directly to build educational plans that address their unique needs.

“The public system has had months now to be aware that there’s a pandemic and that September was coming and that they needed a better plan. It does feel like families, like children with disabilities, have been left out of that plan,” said Humphreys.

In an email, Ministry of Education representatives confirmed their expectation that school districts will be flexible and work with families on a case-by-case basis, including helping families of children with disabilities who aren’t comfortable sending their kids back to the classroom this fall.

But with school starting in a matter of days, Humphreys said she’s waiting for flexible options that meet provincial requirements and expectations to be fully implemented across the province.

“We’re seeing, you know, 60 school districts, plus independent schools, who are under the same direction from the Ministry of Education, responding in very different ways,” she said.

As for Lazarus, Banez said he’s excited to start what they call “mommy school” on Sept. 21.

Brenna Owen, The Canadian Press


Like us on Facebook and follow us on Twitter.

Want to support local journalism during the pandemic? Make a donation here.

CoronavirusEducationSchools

Get local stories you won't find anywhere else right to your inbox.
Sign up here

Just Posted

COVID-19. (Image courtesy CDC)
81 new cases of COVID-19 detected in Interior Health Friday

One additional staff member at Kelowna long-term care home tests positive, no new deaths

Interior Health says Salmo’s COVID-19 cases have been contained. Photo: Wikimedia Commons
Interior Health: Salmo’s COVID-19 cases are contained

Every person who tested positive has recovered

The Village of Salmo has told Cody Puckett and Ashley Nelson that clearing land at this property doesn’t constitute building a property according to a bylaw. Photo: Submitted
Work in progress? Salmo family, village at odds over property construction

Cody Puckett says he’s being evicted from his own land, which the village disputes

Finn Lydon. Photo: Submitted
UPDATE: Winlaw boy reported missing has been found

Finn Lydon was was located last evening

Dr. Albert de Villiers, Chief Medical Health Officer for the Interior Health Authority. (Contributed)
‘People need to start listening’: IH top doc combats COVID-19 misconceptions

Dr. Albert de Villiers says light at the end of the tunnel will grow in step with people’s adherence to PHO guidance

Boundary Community Food Bank President Mike Wakelin thanked Grand Forks’ first-responders and city employees who donated food last week. Photo: Laurie Tritschler
Boundary Food Bank see recent uptick in clients after CERB runs out

President Mike Wakelin said demand plummeted while the benefit was available to working Canadians

Demonstrators, organized by the Public Fishery Alliance, outside the downtown Vancouver offices of Fisheries and Oceans Canada July 6 demand the marking of all hatchery chinook to allow for a sustainable public fishery while wild stocks recover. (Public Fishery Alliance Facebook photo)
Angry B.C. anglers see petition tabled in House of Commons

Salmon fishers demand better access to the healthy stocks in the public fishery

(Hotel Zed/Flytographer)
B.C. hotel grants couple 18 years of free stays after making baby on Valentines Day

Hotel Zed has announced a Kelowna couple has received free Valentines Day stays for next 18 years

Farmers raise slogans during a protest on a highway at the Delhi-Haryana state border, India, Thursday, Dec. 3, 2020. Prime Minister Justin Trudeau rejected the diplomatic scolding Canada’s envoy to India received on Friday for his recent comments in support of protesting Indian farmers. Tens of thousands of farmers have descended upon the borders of New Delhi to protest new farming laws that they say will open them to corporate exploitation. THE CANADIAN PRESS/AP-Manish Swarup
Trudeau brushes off India’s criticism for standing with farmers in anti-Modi protests

The High Commission of India in Ottawa had no comment when contacted Friday

Nurse Kath Olmstead prepares a shot as the world’s biggest study of a possible COVID-19 vaccine, developed by the National Institutes of Health and Moderna Inc., gets underway Monday, July 27, 2020, in Binghamton, N.Y. U.S. biotech firm Moderna says its vaccine is showing signs of producing lasting immunity to COVID-19, and that it will have as many as many as 125 million doses available by the end of March. THE CANADIAN PRESS/AP-Hans Pennink
Canada orders more COVID vaccines, refines advice on first doses as cases reach 400K

Canada recorded its 300,000th case of COVID-19 on Nov. 16

Apartments are seen lit up in downtown Vancouver as people are encouraged to stay home during the global COVID-19 pandemic on Thursday, Dec. 3, 2020. British Columbia’s deputy provincial health officer says provincewide data show the most important area B.C. must tackle in its response to the COVID-19 pandemic is health inequity. THE CANADIAN PRESS/Marissa Tiel
Age, income among top factors affecting well-being during pandemic, B.C. survey shows

Among respondents earning $20,000 a year or less, more than 41 per cent reported concern about food insecurity

Cannabis bought in British Columbia (Ashley Wadhwani/Black Press Media)
Is it time to start thinking about greener ways to package cannabis?

Packaging suppliers are still figuring eco-friendly and affordable packaging options that fit the mandates of Cannabis Regulations

Victoria-based driving instructors are concerned for their own and the community’s safety with the continued number of residents from COVID hotspots in the Lower Mainland coming to the city to take their driving road tests. (Black Press Media file photo)
Students from COVID hotspots travel to Vancouver Island for driving tests

Union leader calls on government to institute stronger travel ban

British Columbia Health Minister Adrian Dix wears a face mask to curb the spread of COVID-19, during an announcement about a new regional cancer centre, in Surrey, B.C., on Thursday, August 6, 2020. THE CANADIAN PRESS/Darryl Dyck
PHSA bought faulty respirators; spent money on catering, renovations: Dix

Such spending included ‘unnecessary, unbudgeted renovations’ to the authority’s headquarters in Vancouver

Most Read